Your son looking at a Christmas tree with wonder and excitement. The smile on his face melting your heart.
Your son playing in the water at the beach, laughing and giggling with every wave that comes in splashing his face with cool droplets of water, feeling nothing but true happiness.
Your son looking at you smiling and giggling because you have stubbed your toe and now it no longer hurts because the love for your son and his smile takes the pain away.
Imagine this ...
Your son coming and grabbing your hand to take him to bed, because he wants you to cuddle him as he falls asleep and how wonderful that feeling is.
Looking at your son as he sleeps with so much love, but now tears are streaming down your cheeks, you find yourself sobbing, praying for a miracle that will save your son.
A family needing help to save their only son. Well this is not something to imagine, it is happening right now and they need our help, please share this to as many as you can, PLEASE.
Someday this could be one of our children that is in desperate need of help, no child should be overlooked because of a disability or lack of funds. Please be a part of the fight to save this child...
If you know of any funding available or foundations to help Robert to get a life saving transplant, please contact the family below, this is urgently needed :
HELP PLEASE !!!!! If someone knows what this family can do please post, this is URGENT he has waited way to long and his life is hanging in the balance something needs to be done now!!!
Update on Robert Moldenhauer: He is still awaiting the insurance approval for lifesaving treatments in Boston, how they can drag their feet like this is beyond me, all of the hospitals that could help him within his state refused to and now one of the top hospitals in the country wants to help but the insurance isn't wanting to pay because it is out of state, hopefully his mom Shohreh Moldenhauer will hear good news soon !!
I remember it like it was yesterday "Your Son Has Autism". That day was a little over three years ago. My heart broke, I tried to talk and all I could do was cry. What, why, would, is he going to be able to have a normal, what?!! I couldn't even form a full sentence, through my heartbroken tears caused by those four words. My tears flowed for two hours after and just when I thought I had got myself together, I would look at my son and the tears would start flowing again. I hated the fact that I was now looking at my son differently. I felt guilty for looking at my son like he was broken or defective some how. Why did that woman have to say those four words? Now what I thought was cute or funny was "Autism". This wasn't cute or funny anymore, this was a sign that my son was never going to have a full life. He was never going to experience all the things in life I thought he would.. He was never going to have friends, girlfriends, marriage, children, a career, driving a car, a life. My son , my beautiful boy was never going to get to live a normal life!
A few day's after my son's diagnosis I quickly went into denial, she's wrong ,that lady , that so called doctor, doesn't know what she's talking about. Brandon doesn't do that so he doesn't have "Autism" and look he isn't doing that either so he couldn't have "Autism". I was ignoring everything that he clearly did do that was "Autism".
The doctor said he needed to get into therapy, okay fine , it's not like it's going to hurt him, even though I thought I had convinced myself, he didn't have "Autism". We made the appointment for his therapy evaluation. Today was the day ,off we go to this unnecessary therapy appointment. We got there and I met some parents as their children played and Brandon stayed by my side or crawled under the chair. I started watching these children playing and some even talking, some of them could even read at the age of three, they seemed even more normal than my son. So now that sinking feeling was coming back, that same feeling I had that day when that doctor diagnosed my son, except it was me that was saying it this time "My Son Has Autism". I cried again in the car on the way home, but I knew it was time to brush myself off and do everything I could for my son. My son was going to be the best he could be, whatever that may be. I was going to research and study like I had never done in my whole life. I was his mother and I was supposed to help to guide him and teach him and be there for him whether it was till he was an adult or longer! I couldn't do that if I was to drown in my own sorrows and denial. So I went on my mission and my promise to my son was to "Never Give Up" and "Never Give In" and I will keep that promise to him and do everything I can do, to help him be the best he is possible to be, whatever that is. "I Love You, Brandon"
My son is much better now, but my promise is still there for however long he needs it.
One last thought: If you don't let go of your sorrow, you can't help your children live their best tomorrow.
When Brandon was diagnosed I was told that typically with Autistic children there is not really a sense of humor and that imagination is lacking because they tend to take things in a more literal sense.Well whenever I am told something like this I am determined to see if I can change that, this would be yet another aspect of Autism I would not accept unless absolutely necessary, maybe he just needed to be taught what imagination was.
We started with just little noises, bird sounds, snake hisses and things like that and saying I'm a bird, I'm a snake and then I would run around the house with arms out saying I'm a plane and he would mimic me and do the same. I figured, okay he's just copying me but at least it was a start, the issue of a sense of humor being taught I wasn't really sure of how to get that even started though, so it would have to wait and maybe it would come to me, one thing at a time.
One day when we were doing our imagination therapy, that's what I will call it, we were crawling on the floor and roaring like lions, then we were lifting our trunks like elephants and of course he was still just copying me. Well as we were being elephants , Brandon decided we should be dogs, I thought this was great that he was actually wanting to get in on the act of what we would imagine. So as Brandon and I were crawling and barking like dogs, I heard him what I thought was hissing behind me, I was thinking now we were going to be snakes, but as I turned around I realized I was wrong, Brandon had his leg lifted so I asked him what he was doing he said he was a dog peeing and then could not control his laughter, nor could I! Not only did my son have imagination but he also had a sense of humor.
He now loves to use his imagination, some days he even says he's the mommy or the daddy and imitates us to make us laugh, that's his sense of humor kicking in, I'm so glad that I didn't accept what was said and tried anyway, I might have missed out on this.
The morning my son said Mommy, I love you, was what I thought was going to be a typical morning, when I say typical I mean in the sense of autism typical for us. For the last year and a half we had been struggling with many ups and downs. The downs being major meltdowns, no speech, frequent illness and constipation, no eye contact, repeating(echoing) to the point of wanting to cover your ears and loud squealing that would vibrate your eardrums etc... The ups being spontaneous speech breakthroughs, eye contact occasionally, smiles and sleeping through the night without fits of fear. He had also started playing with toys in the manner in which they should be played with and started to give us hugs , I so cherished the hugs.
The night before this typical morning, I thought I needed a vacation from this, something to give me the strength and energy to keep going, a refresher for autism mommy hood. As I laid and slept on this particular morning I was woke up by my son saying Mommy, I had heard him say this before but what I heard next would make me sit straight up in bed. He said "I LOVE YOU", I looked at him and saw the biggest smile on his little face as he looked right at me. Those three words brought tears to my eyes, I had waited for four and a half years to hear those words, that I did not know if I would ever hear.
Thank you Brandon for the renewed strength, No Vacation Needed !